What is disturbing about the story is not the bizarre headline or outlandish sensationalism, but that no where do the reporters inquire about or describe what information is provided to the patients or what the patient's decisions and desires had been.
Were the patient's wishes followed? What are the procedures used to determine those wishes?
My father, absolutely lucid and rational til the end, after consultation with his regular doctors and a team of palliative care physicians and clergy, refused additional medical treatment after his terminal cancer had metastasized. What he wanted was provision for pain and comfort at an in-patient hospice facility, which included the sedation he ultimately requested.
My mother, also lucid and rational til the end, with terminal cancer, after consultation with a palliative care team, also refused additional medical treatment and elected in home hospice with provision for pain and comfort. Ultimately the pain became too great and she was transported to the hospital for pain management, where she died pain free and lucid to the end.
My sister, neither lucid nor rational at the end, with Parkinson's, after consultation with her doctors and family while still in control of most of her faculties, decided that she wanted any and all medical treatment that was available. If she was unconscious, we were to "find out why".
Ultimately even the best anti-biotics available could not ward off the infections her weakened condition fostered, and she too died, unconscious, in hospital where she was transported for one final effort to save her. The doctors said they could do nothing further.
The key for me was that in each case my relations had made their wishes known. Their personal autonomy was the key point to emphasize in these end of life type of situations. I found each of their decisions sound, and fit their needs.
Indeed, my sister's direction to "find out why", and to do everything possible, turned out fine for her for a good while, the doctor's brought her back from near death on four occasions after we told them of her wishes. After the first occasion ---after months of rehab--- she finished the book she was writing, "When Parkinson's Strikes Early" which has gone thru two printings by her publisher and which has been of help to others with Parkinson's.
On the other hand, she ultimately spent 4.5 years in a skilled nursing facility, essentially frozen for the last year and a half, unable to move, in extreme pain frequently, and suffering from Parkinson's and medication induced pyschosis, a terrible way to "live".
But she was terribly afraid to die.
So, bottom line-- it is best to plan for one's medical needs in advance, and to make known to your family and caregivers, in writing, how you want your life to end, if there is any ability to control that process.
Most attorneys now days, in addition to a will and trust, will provide you with "advance directives" in which you provide your caregivers with the directions on how you want to be treated, and powers of attorney for health care decisions.
Advance directives are also available for free, on line.
My dad went so far as to have his do not resuscitate (DNR) order scotch taped to his coffee table. He didn't want an EMT to do something contra his desires.
[A DNR is a request not to have cardiopulmonary resuscitation (CPR) if your heart stops or if you stop breathing. (Unless given other instructions, hospital staff will try to help all patients whose heart has stopped or who have stopped breathing.) You can use an advance directive form or tell your doctor that you don't want to be resuscitated. In this case, a DNR order is put in your medical chart by your doctor. DNR orders are accepted by doctors and hospitals in all states.]
End of Life Issues Link
Edited by Geomean, 20 June 2012 - 11:25 AM.
Opportunity knocks on your door every day-answer it.